Hello everyone,
So as some of you may have seen in previous posts, I had a meeting with the bowel & endo specialist on Wednesday (The same one who during our last meeting was totally unhelpful & was the cause of that very depressing post I wrote after). I did not hold out much hope for this second meeting- & it turns out I was right not to. The only reason I was seeing him was because my GP had written a strongly worded letter telling him that I needed to be treated properly.
I am not a medical professional but I know when I am being fobbed off. He obviously hadn't read the report from my surgery as he commented "Well it can't be the endometriosis causing the problem as we did remove some of it & it obviously hasn't helped". No, they removed a tiny amount for biopsy as it was TOO DANGEROUS to remove more (due to bleeding, my oxygen levels dropping ect). He avoided discussing my questions (such as what treatment is there?) & told me he was just going to refer me back to my GP who could decide my treatment. What a nice, helpful doctor!
So meantime I am stuck with no end of problems, I am not ovulating so I don't even know if I can have kids, I am in constant pain & now have the stress of waiting. I know my GP will not be happy with the way I have been treated by this particular doctor (again!). She has been fantastic through all of this, & I know she will do everything possible to get me the treatment I need. But in the meantime I am still suffering & it isn't fair.
On a more cheerful note at least now I can say that hopefully I will be referred to somewhere that I can actually get treated, & until then I will keep my chin up. I am still pretty poorly from my chest infection, but it is very slowly getting better (finally!) & am just taking each day as it comes.
On a slightly different note I want to say thankyou to someone. I am a member of the Health Unlocked Endometriosis UK support forum. Its basically a page where women who suffer from endometriosis can go to get advice, share experiences & generally support each other. I won't mention names but there is one particular person who I have been chatting to for a while now, & consider her a friend. Every day I always get a message asking how I am & how I am feeling, & its just nice to be able to chat, talk through the ups & downs, & to help eachother out. So thankyou :)
Hope you all have a good week. I'm doing a few new posts this week so watch this space! Thanks for reading! Xxx
Showing posts with label Updates. Show all posts
Showing posts with label Updates. Show all posts
Friday, 5 September 2014
Monday, 11 August 2014
A very busy month!!!
Hello lovelies!!!
It's been almost a month since my last post, but this isn't down to laziness, I promise :)
The last few weeks have been crazy busy- birthdays, endless hospital appointments, travelling & some personal changes. It's not been easy- & I'm hoping that this next few weeks will see things slow down as I am absolutely exhausted.
So the first thing is I turned 20 a couple of weeks ago. This for me was kind of a big deal as it really bought home just how fast time passes. 2 days before my birthday I was worried that I'd be in hospital for my 20th as I ended up being rushed to A&E with chest pains again (I got released the next day being told it might be the endometriosis spreading to my chest & that I needed to go back & see the consultant as soon as possible). My birthday itself was nice- just a small party with family & friends. I went up North to my grandparent's that weekend & had a nice shopping spree in Liverpool (more about that in another post!).
The second thing is all of the hospital appointments- I am having hand therapy at the moment & have 1 session per week. Me & the hand therapist have both agreed that I'm not benefitting from it, but I want to go through with it so that I can at least tell the consultant I tried. It is a shame as I was hoping it would help, & I am really now hoping that the hand consultant will be able to do something. I've also had various other appointments- general checkups, blood tests, medication reviews ect... the list goes on.
I have received an appointment to see the bowel specialist again on the 3rd of September (let's hope that this time he will actually try to help me instead of fobbing me off!) It rather annoyed me when the hospital rang to offer me the appointment though, as they told me on the phone that there was no record of him having the previous appointment with me (no notes from clinic, not even the supposed refferal to pain management which he tried to fob me off with). There was also no record of him having received or reviewed my laparoscopy results- as you can imagine I was fuming. This was the same man who sat there & told me he didn't want to treat me & was just going to send me to pain management! The lady on the phone was sympathetic & agreed that it was appauling- for someone who has stage 4 endometriosis, they should be doing alot more to ensure I get the correct treatment & help.
Rant over anyway! A couple of other changes have taken place too. Just before my birthday I made the decision to cut my hair short again. It was a hard choice but necessary- I have very thick hair & having it long meant it took alot of looking after. This wasn't always easy, especially when I'm not well & no matter how many times I brushed it it always seemed to turn into a mass of knots. So off it came. However I wasn't too upset as I went back to my old style- a cute & femenine Rhianna-style cut. I also went from bleached blonde to a lovely soft bluey-black so overall I'm happy. The second change is I've had another tattoo, but there will be more about that in a later post so for now my lips are sealed! Needless to say I am going to be tackling some of the issues surrounding tattoos so watch this space!
So, an overall very busy month. Like I said, I am hoping things will start to calm down & I am currently working on a few new posts full of exciting things, which I will post over the next few days. Until then, thanks for reading :) Xxx
**********************************************************************************************
For questions, suggestions, opinions & comments, feel free to either comment below or email me at:
dollytrolley1994@gmail.com
It's been almost a month since my last post, but this isn't down to laziness, I promise :)
The last few weeks have been crazy busy- birthdays, endless hospital appointments, travelling & some personal changes. It's not been easy- & I'm hoping that this next few weeks will see things slow down as I am absolutely exhausted.
So the first thing is I turned 20 a couple of weeks ago. This for me was kind of a big deal as it really bought home just how fast time passes. 2 days before my birthday I was worried that I'd be in hospital for my 20th as I ended up being rushed to A&E with chest pains again (I got released the next day being told it might be the endometriosis spreading to my chest & that I needed to go back & see the consultant as soon as possible). My birthday itself was nice- just a small party with family & friends. I went up North to my grandparent's that weekend & had a nice shopping spree in Liverpool (more about that in another post!).
The second thing is all of the hospital appointments- I am having hand therapy at the moment & have 1 session per week. Me & the hand therapist have both agreed that I'm not benefitting from it, but I want to go through with it so that I can at least tell the consultant I tried. It is a shame as I was hoping it would help, & I am really now hoping that the hand consultant will be able to do something. I've also had various other appointments- general checkups, blood tests, medication reviews ect... the list goes on.
I have received an appointment to see the bowel specialist again on the 3rd of September (let's hope that this time he will actually try to help me instead of fobbing me off!) It rather annoyed me when the hospital rang to offer me the appointment though, as they told me on the phone that there was no record of him having the previous appointment with me (no notes from clinic, not even the supposed refferal to pain management which he tried to fob me off with). There was also no record of him having received or reviewed my laparoscopy results- as you can imagine I was fuming. This was the same man who sat there & told me he didn't want to treat me & was just going to send me to pain management! The lady on the phone was sympathetic & agreed that it was appauling- for someone who has stage 4 endometriosis, they should be doing alot more to ensure I get the correct treatment & help.
Rant over anyway! A couple of other changes have taken place too. Just before my birthday I made the decision to cut my hair short again. It was a hard choice but necessary- I have very thick hair & having it long meant it took alot of looking after. This wasn't always easy, especially when I'm not well & no matter how many times I brushed it it always seemed to turn into a mass of knots. So off it came. However I wasn't too upset as I went back to my old style- a cute & femenine Rhianna-style cut. I also went from bleached blonde to a lovely soft bluey-black so overall I'm happy. The second change is I've had another tattoo, but there will be more about that in a later post so for now my lips are sealed! Needless to say I am going to be tackling some of the issues surrounding tattoos so watch this space!
So, an overall very busy month. Like I said, I am hoping things will start to calm down & I am currently working on a few new posts full of exciting things, which I will post over the next few days. Until then, thanks for reading :) Xxx
**********************************************************************************************
For questions, suggestions, opinions & comments, feel free to either comment below or email me at:
dollytrolley1994@gmail.com
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